Marcy Newsome: Hi, I am Marcy from the Brain and Spinal Cord Injury Center at brainandspinalcord.org. Today I will be talking about Clinical Research Trials for brain injury survivors. We will discuss what Clinical Research Trial to offer as well as how to find them. Be sure to check the website for all relevant links and a recap of this article.
First of all, let's define Clinical Trials. Clinical Trials are research studies in which people who fit in certain criteria are eligible to participate. The goal is to answer specific questions, quite often about the effectiveness of the Cutting-edge treatment. The four Clinical Research Studies allow to happen and that explore, reviews the study to determine whether it will take place. People who are volunteer to participate and made the criteria are then made aware of the possible risk and benefits of participation. When all is set and done, it's up to them to decide whether or not they participate. In some cases people will receive a fee for participating in the study.
Let's talk about some pros and cons of Clinical Research Trials. First of all, these trials often study the most scientifically advanced cutting-edge treatments available. That means that Clinical Research Trial offer the participant a wonderful opportunity to assess some of the most advanced treatment and experience, an outcome that might not otherwise be available. On the other hand, there are no guarantee. The volunteer may not experience result he or she was hoping for and may even experience negative side effects.
Volunteers should read all research materials, ask lots of questions and share the information with their doctor before deciding to participate in the trial. If you are a brain injury patient, or a family member, or friend of a brain injury patient, you may wonder what a fine Clinical Research Trial is. Unfortunately, there is no one answer to this question. Many other diseases and disorders such as AIDS and cancer have the majority of their Clinical Trials neatly less than in one area. Not so is Clinical Research Trials related to traumatic brain injury, there are couple of possible reason for this. First off all brain injury isn't just one disease. There are several different types of brain injury each one of which has its own symptoms and stages. Second of all, the level of public awareness regarding brain injury is not comparable to that of more common disease and disorders. What does all this means? Basically, it means that locating Clinical Research Trials on brain injury can be a real challenge. Thanks to today's technology, one of the best place to find Clinical Research Trials is by searching the Web.
Begin by searching for local universities or large rehabilitation centers as they frequently run clinical trials. Clinical Research Trials related to brain injury can also be found on the following website, www.acurian.com. This website allows the participant to develop a personal profile. www.centerwatch.com, CenterWatch lets Clinical Research Trials and allows visitors to be notified by email of Clinical Trials that might fit their profile. www.clinicaltrials.gov provided by the National Institute of Health, the National Library of Medicine and the Federal Drug Administration. This site list a large amount of clinical trials those in the United States and in 70 additional countries. www.rehabtrials.org, this site list Clinical Research Trials related to rehabilitation. www.trialscentral.org, Trials Central offers a list of clinical trials as well as educational material for the potential volunteer.
www.veritasmedicine.com. This site list research trials as well as the notification option that lets the registered user know compatible opportunities. www.cc.nih.gov, this website for the Warren Grant Magnuson Clinical Center lists trials funded by the National Institute of Health. For any one interested in learning more about Clinical Research Trials, there are two great pieces of literature that we would like to recommend. The first is called The Guide to Clinical Research and it's published by the Warren Grant Magnuson Clinical Center. You can find this pamphlet to the National Institute of Health.
The second is called, The Bill of Rights for Clinical Center Patients and is available through the National Hospital Association. This conclude our segment on Clinical Research Trials for brain injury survivors. Remember to check our website for the most up-to-date information including resources and tips regarding brain and spinal cord injuries. Thanks again for watching.
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